Last day of this round of antibodies and possibly back ‘home’ tomorrow!   Robyn seems to tolerate this particular round of treatment better every morning – it is towards the middle and end of the infusion that she may have a few problems.  Her temperature is very up and down and this sometimes happens before she vomits.    She also had pain in her tummy at around three o’clock and it is at this time that she gets a bit cranky and demands dvd’s and a sleep.  Pauline and I were so grateful when she slept because she had been bossing us around and grumping at us!!  Later in the evening Robyn got a rash on her face and neck and then started scratch her legs, torso and face.  She was really upset and agitated but as soon as the nurse gave her some Benedryl this settled very quickly.  One day is merging into another here now and I really have to think about what has happened during the course of the day.  I am so relieved that this round is complete.  I have been so very worried about the pain aspect of the treatment but look at what she has been through so far.  She still has a fantastic sense of humour and I sometimes think I have Carly from I- Carly as my daughter!!  When she sees me tucking a cake or a biscuit she looks at me and says “Mummy, you really don’t need that do you?” as she shakes her head, cocks it to the side and looks at me with pity. 

 

Tom visited today and brought Robyn a lovely teddy-bear (where am I going to put them all??!!)  and some DVD’s as ours don’t work over here.   He also brought me in some Cadburys chocolate as I was complaining about the chocolate that is on offer here.  I told him that I needed some ‘real’ chocolate.  Now I have about 5 big bars…. yum….    You’d think I really enjoyed my chocolate but I can usually take it or leave it.  It’s when you KNOW you can’t get Cadburys it ends up a must have!

 

Hopefully we will be able to go home tomorrow.  We have been stuck in this room since Wednesday night.  Robyn has only got out of the bed to be weighed x2 a day and to use the commode.  It will be so wonderful for her not to be attached to so many wires and this week I am going to spoil my special little girl rotten.

 

What I am typing at the moment is actually quite boring.   I think, in this situation, boring is good ;-)
 
I’m missing my boys xxx
Lots of love,  Lisaxxx