Day 2 of antibodies and Robyn woke in a great mood. Any medication that was causing her problems the previous day appeared to be clearing from her little body and she ate a bowl of cereal for breakfast.  Alright. If I’m honest it was Frosties…. 

 

We have had lots of visitors today.   Julie, a lovely lady we have met at Ronald Mcdonald house who is here with her daughter Jennifer  (having physical therapy treatment at Children’s Hospital),  Tom and then later in the afternoon Maureen and Mark who have also been beavering away behind the scenes to help our family now that we are in Philadelphia.

 

Once again, Robyn has tolerated the treatment fairly well.  Her mood has been very up and down and at times it seemed like we had ‘Steroid Stella’ back again!  She has been VERY talkative -more so than usual but could easily become agitated because at times she was very itchy.  Her throat and ears were the main culprits but she also had the same mild rash on her face as she did yesterday.  Again, this would come and go.  At about 7pm Robyn’s hands became very painful and she hit the morphine pca pump along with some hot packs.  The pain dissipated after about an hour.   She had been spiking a mild temperature for a few hours on and off so this evening blood was taken from her port to be cultured.  From what I can understand this is more to ere on the side of caution as the fever is more than likely caused by the antibody rather than a bug.  I think the antibiotic has started as I can hear the pump bleeping.  So that’s day two over.  We have had 2 nurses caring for Robyn today, Maura and Laura.  Robyn thought they were great and so did I.  She said she wished she had called her wigglys Laura and Maura!  We have a nurse called Jen working with us tonight and she is fab too.  So Robyn, my beautiful Warrior Princess coped fantastically.  I love her so much and I only wish I had her strength.

 

It’s Nanny Pauline birthday tomorrow and I haven’t got her a blinking card.  Shame on me…  Happy Birthday Pauline!!!  You are so good to us and I promise we will celebrate next week.
Robyns’s snot test (yes, they took a sample of snot!) just came back as Rhino negative (or positive?) can’t remember.  This is the common cold so hopefully this is ok.  The spelling for that is soo wrong but it is midnight :-)    Love to everyone,  Lisaxxx