Hello all. We are now updating regularly with the latest developments. We really appreciate all your fantastic support, so please do leave a comment, join the Facebook group (top right) or get in touch!
In may 09 our beautiful, then 7 year old little girl was diagnosed with Stage 4 Neuroblastoma, a cancer usually found in very young children.
To date she has endured 9 rounds of chemotherapy, a very painful stem cell harvest, a 9 hour surgery to remove the very large primary tumour from her pelvis (rendering her unable to walk for 7 months), a high dose chemo to eradicate her bone marrow followed by a stem cell transplant, and then 15 rounds of radiotherapy.Click here for the full story and donation information
The next and what should have been the final stage of Robyn's journey brought us to Philadelphia in The US where a huge fundraising drive allowed her to receive Immunotherapy together with a drug called Accutane.
The aim of this therapy was to rid her little body of any stray lurking cancer cells that cause such massive rates of relapse in Neuroblastoma.Click here for the full story and donation information
Sadly, a year after completing treatment, routine scans showed that Robyn had relapsed. Fortunately, Robyn responded really well to three cycles of salvage chemotherapy but unfortunately here in the UK, there are no relapse studies for Neuroblastoma.
In Philadelphia (and in various institutions within North America) there are real options for Robyn and other children like her. Without these options, the outcome for Robyn is unthinkable.Click here for the full story and donation information
As UK citizens we have no insurance for health care in America so Robyn's treatment comes at a great cost. Please, please help us give our delightful, playful, brave, gorgeous,cheeky girl a future by donating in any way you can to Robyn's appeal.
In dollars or in pounds, YOU REALLY WOULD BE HELPING SAVE OUR DAUGHTER'S LIFE Lisa & GregWe would be immensely grateful if you clicked here and donated
Our Facebook group is where most of the conversations are happening! Please join in. Click here to view/join our group.
